Our Stories

We each individually play our own part in our own way, but there are also times when we need to band together and make sure that people understand that these are not isolated little pockets of patient communities.

My name is Iza, I am 24 and I am a patient with a Primary Immunodeficiency (PID). My symptoms, such as recurrent severe infections unresponsive to conventional treatment and often requiring hospitalization, as well as tiredness and general feeling of being unwell, began when I was just a child.

I am Karen, and I am 46 years old and an elite disabled athlete. Because of my plasma therapy, I can participate in sports, run a non-profit that works globally to socialise and mobilise people with lung disease, and spread information to the public about lung disease, and Alpha-1 in particular.