“These are not therapies that provide a small measure of comfort or a little bit of increased ability. These are lifesaving and life-changing.”
John, living with a primary immune disease
We each individually play our own part in our own way, but there are also times when we need to band together and make sure that people understand that these are not isolated little pockets of patient communities.
"If it weren’t for the people who donate plasma on a regular basis, I probably wouldn't be the same happy person, fulfilling myself in every aspect of my life."
Iza , living with a primary immune disease
My name is Iza, I am 24 and I am a patient with a Primary Immunodeficiency (PID). My symptoms, such as recurrent severe infections unresponsive to conventional treatment and often requiring hospitalization, as well as tiredness and general feeling of being unwell, began when I was just a child.
‘’I have learned to take nothing for granted, live life to the fullest and enjoy making memories with my family and friends.’’
Michelle, living with Hypogammaglobulinemia & Idiopathic Thrombocytopenic Purpura
I was 29 years old when I was first diagnosed with Idiopathic Thrombocytopenic Purpura (ITP). I had 6 platelets left and was bleeding from the inside and covered in countless scary bruises.