“These are not therapies that provide a small measure of comfort or a little bit of increased ability. These are lifesaving and life-changing.”
We each individually play our own part in our own way, but there are also times when we need to band together and make sure that people understand that these are not isolated little pockets of patient communities.
"If it weren’t for the people who donate plasma on a regular basis, I probably wouldn't be the same happy person, fulfilling myself in every aspect of my life."
My name is Iza, I am 24 and I am a patient with a Primary Immunodeficiency (PID). My symptoms, such as recurrent severe infections unresponsive to conventional treatment and often requiring hospitalization, as well as tiredness and general feeling of being unwell, began when I was just a child.
‘’I am a powerlifter in the Norwegian non-disabled federation; elite class disabled strongman and world record holder."
I am Karen, and I am 46 years old and an elite disabled athlete. Because of my plasma therapy, I can participate in sports, run a non-profit that works globally to socialise and mobilise people with lung disease, and spread information to the public about lung disease, and Alpha-1 in particular.