Our Stories

We each individually play our own part in our own way, but there are also times when we need to band together and make sure that people understand that these are not isolated little pockets of patient communities.

I am Karen, and I am 46 years old and an elite disabled athlete. Because of my plasma therapy, I can participate in sports, run a non-profit that works globally to socialise and mobilise people with lung disease, and spread information to the public about lung disease, and Alpha-1 in particular.

I was 29 years old when I was first diagnosed with Idiopathic Thrombocytopenic Purpura (ITP). I had 6 platelets left and was bleeding from the inside and covered in countless scary bruises.