Our Stories

We each individually play our own part in our own way, but there are also times when we need to band together and make sure that people understand that these are not isolated little pockets of patient communities.

My name is Iza, I am 24 and I am a patient with a Primary Immunodeficiency (PID). My symptoms, such as recurrent severe infections unresponsive to conventional treatment and often requiring hospitalization, as well as tiredness and general feeling of being unwell, began when I was just a child.

I was 29 years old when I was first diagnosed with Idiopathic Thrombocytopenic Purpura (ITP). I had 6 platelets left and was bleeding from the inside and covered in countless scary bruises.