"Today I marched in the school band at a football game."

Sam, living with CIDP

"I was diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) in January, 2013, when I was 10 years old. Since then, I have gone through periods of ups and downs. I started off in a bad place, but I had improved significantly by June, 2013, and I was able to stop having infusions of immunoglobulin (IVIG).

After a slow, steady decline, I had to resume infusions again, starting in January, 2015, through June, 2015. After a more sudden relapse, I have been having infusions from April 2016 to the present.

CIDP has gradually become business as usual for me and my family. I have managed to keep high grades in school and keep up with a good social life. IVIG has always made my strength and ability to do activities much easier. I am free to go to school, play in my school's band, and do plenty of moderate physical activities, which makes everything so much better for me."


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