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  • ‘’Doctors need to be aware of the most up-to-date treatment options to promote the best outcomes for their patients."

‘’Doctors need to be aware of the most up-to-date treatment options to promote the best outcomes for their patients."

Adrienn, living with Guillain-Barre Syndrome

On Monday May 26, 2014, of my own accord, I went to the hospital with the following symptoms: toe numbness, imbalance, lower back pain. I could hardly walk.  My situation continued to deteriorate. The diagnosis was Guillain-Barre Syndrome (GBS).

I received five plasmapheresis therapies. I had to re-learn to speak, write, sit and stand again. I was allowed home on December 3, 2014. I need to use a cane for walking now. I went back to work, but I currently can’t work full-time. I cannot push myself too much.

I think that it’s very important for doctors to recognize rare diseases and to provide the necessary treatments as soon as possible – to save lives and improve patients’ quality of life. Doctors need to be aware of the most up-to-date treatment options available so they can promote the best outcomes for their patients.

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We want to hear from you! Every person living with a disease that is treatable with plasma protein therapies has a unique story to tell. If you are impacted by one of these diseases, please consider sharing your story. Share your story and a photo in the e-form to show your support of ”How Is Your Day?” We will review your submission and share it on the ”How Is Your Day?” website and via our Facebook and Twitter channels. Together, we can make a difference.
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