"Thanks to plasma protein therapies, I am living with this condition rather than just suffering with it."

John, living with Hereditary Angioedema

"I am a 32 year-old patient living with Hereditary Angioedema. I am happy to say I am living with this condition rather than just suffering with this condition, thanks to access I have to C1-esterase inhibitor plasma therapy. Before having access to the therapy, my life was dominated by emergency room visits and many late nights spent on the bathroom floor. HAE patients carry a 30 percent mortality rate when untreated. For me, this means every night when I go to bed there is a good chance that I may suffer laryngeal swelling in my sleep, and I will not wake up. 

"Thanks to access I have to treatment that is a fear that I no longer have to live with. I am now able to work, travel with my family, and enjoy many aspects of life that I once thought to be out of reach as a chronically ill patient. Watching the tremendous improvement in many HAE-affected family members has given me hope for the future – not only for me, but for all my family. 

"I will be forever grateful for the access to plasma therapy, because without C1-esterase inhibitor, my life would be extremely different."

Submit your own story!

We want to hear from you! Every person living with a disease that is treatable with plasma protein therapies has a unique story to tell. If you are impacted by one of these diseases, please consider sharing your story. Share your story and a photo in the e-form to show your support of ”How Is Your Day?” We will review your submission and share it on the ”How Is Your Day?” website and via our Facebook and Twitter channels. Together, we can make a difference.
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