‘’I am a powerlifter in the Norwegian non-disabled federation; elite class disabled strongman and world record holder."
I am Karen, and I am 46 years old and an elite disabled athlete. Because of my plasma therapy, I can participate in sports, run a non-profit that works globally to socialise and mobilise people with lung disease, and spread information to the public about lung disease, and Alpha-1 in particular.
‘’I have learned to take nothing for granted, live life to the fullest and enjoy making memories with my family and friends.’’
I was 29 years old when I was first diagnosed with Idiopathic Thrombocytopenic Purpura (ITP). I had 6 platelets left and was bleeding from the inside and covered in countless scary bruises.
"Today I marched in the school band at a football game."
"I was diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) in January, 2013, when I was 10 years old. Since then, I have gone through periods of ups and downs. I started off in a bad place, but I had improved significantly by June, 2013, and I was able to stop having infusions of immunoglobulin (IVIG).